Thursday, June 28, 2012

It's the Little Things

I'm coming out of one of the most difficult times I've had so far with cancer.  I guess knowing in your head that it will be hard, and actually experiencing it are two different things. My morale has been at an all-time low.  But there is a light at the end of every tunnel. 

Yesterday, I finally pulled free of the worst symptoms, and the relief sent my spirits soaring.  Cancer is very much the proverbial roller coaster ride.  There are days when I'm at the bottom, and I wonder how I can go on.  But then I climb back out and find faith and light again.

I'm also learning to feel joy in simple things and use it to battle the blues brought on by those low spots.  Steve took me for a drive in the mountains.  He stopped to hop out of the car and pick me a wildflower because I thought they were pretty.  The sun sparkled on its leaves.

We had a five minute rain storm that brought a short respite from the drought and a clean fresh scent to the air.  I watched the storm clouds from my bedroom window until it was too dark to see.

I saw my first rainbow in months, and it occurred to me that all of these small beauties are God's way of sending us peace to soothe us through the hard times, if we just make enough effort to notice them.

Thursday, June 21, 2012

Hog-Tie Me

Before I had cancer, chemo treatment conjured up images of bald women constantly hanging over the toilet because they can't keep down their breakfast.  Not a pretty picture, I admit.  Well, I've had the bald part down from the start, but I thought I'd dodged the upset stomach bullet.  Until now.

This week, I discovered just how good I had it with my old chemo regime.  Not that I've been hanging over the toilet--I've been popping pills like a maniac to keep myself from that unpleasant activity--but my stomach still makes its misery known.  Actually, it's been a lot like the first trimester of pregnancy, except I have no bundle of joy to look forward to at the end of this ordeal.

With the new regime, I'm also fighting a greater fatigue than I've had before.  Shopping for clothes the other day required me to constantly stop and rest my arms.  I felt like I was lifting weights, just from pushing clothes on the rack and trying on shirts. 

And then there are the body temperature issues.  One minute, I'm freezing and huddled in blankets; the next minute I'm broiling hot, throwing off my hat and blanket to get some air.  But, I guess you can't expect to get hit with the big guns and walk away unscathed.

My biggest worry is: how in the world will I get myself to go to the next treatment?!  Every time I think about it, I want to pitch a world-class temper tantrum.  Steve said he might have to hog-tie me to get me up there.

The only bright spot is that I don't have to place myself in the line of fire again for 3 weeks.  Maybe by then, I'll be able to work up my courage enough that Steve can leave his rope at home.

Saturday, June 16, 2012

Being On the Receiving End

This week, as we drove into town from the latest treatment, we noticed a car wash going on at the Visitor's Center, with lots of kids and teens hosing down cars and waving signs to flag down more customers.  Their signs proclaimed they were the "Service Club."

We hadn't been home long (I was exhausted) when we got a call from our sister-in-law.  She wanted to ensure we were here, and warn us we'd soon have visitors.  Sure enough, after awhile, the kids ecstatically informed us (and half the neighborhood) that a lot of cars and people were coming to our house.  I nearly ran out the back door to hide.

Instead, I braved the crowd on our front porch.  I recognized them as the group we'd passed earlier, running the car wash.  They handed me a fat envelope.  When I opened it and saw the wad of cash inside, I burst into tears.  As one of their adult leaders explained, they'd just formed a service club for kids in our community, and decided to make me and my family their first project. I was deeply touched.

I've always tried to be an independent person, so being on the receiving end of service doesn't come naturally.  If I know someone else needs help, I jump in without hesitation; but I'm not so good at asking for help when I need it.  I find it very difficult to admit to others that everything is not so hunky-dory as I make it seem.

Steve and I constantly get the question: "How are you doing?"  My standard reply is: "Fine. I'm handling the treatments really well."  I like to pretend that my life is still pretty normal.  But reality has a way of bursting my bubble every so often.  Even though I've had it relatively easy so far, this battle takes its toll on my morale.  There are days when I feel that my battle with cancer is slowly stripping me down to nothing--when I realize that my life will never be the same again--and I mourn.

That's why I'm so grateful for sensitive friends and family.  They brighten my day by diving in and doing things for me, often without being asked, because they know I need help . . . even if I stubbornly refuse to admit it.

So, this shout-out goes to all the people who have brought in meals, watched my kids, given me a home during treatment days, dropped off flowers, washed cars for me, quilted for me (a mysteriously anonymous group), and told me I look like a movie star in my wig when I feel like a circus sideshow.  You guys are all awesome--and I am so grateful for each one of you!

Wednesday, June 6, 2012

Vacation

For the first time, the nurse had some trouble last Monday with my port.  I guess it was clogged or something.  After flushing it with saline several times, he finally got it working.  So, that was a little out of the usual routine.

I only have 1 more treatment of abraxane left, then I switch to a different drug for 4 three-week treatments.  That means I'm almost halfway through chemo.  Hurray!

I haven't written anything for awhile because I've been away from home for a week and a half.  We decided to stay with my parents for the week between 2 treatments and get "2 for the price of 1."  All the kids are out of school now, so we also had the whole crew with us. 

To keep everyone sane, I planned a simple activity each day that would get us out of the house, but not be too exhausting for me.  It was a fun week, and I found myself actually forgetting, at times, that I have cancer.  Here's some highlights:

Feeding the only duck on the pond.  He wasn't very hungry.
The fancy studios at the new KBYU building we toured.  I used to run one of those cameras for real!
The whole gang at the Bean Museum...being charged by an elephant? ;-)
All the kids were enchanted to meet Hedwig (Harry Potter's pet) at the museum!
Eating ice cream at the BYU Creamery--YUM YUM!
Touching animal furs at a "mini" Mountain Man Rendezvous.